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Message Board>
Any questions????
owner
8 posts
Dec 08, 2006
5:37 AM
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If you could ask one question related to what this disease has done to your body, your relationships, your life...What would it be?
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crstllncstr
4 posts
Jan 28, 2009
8:25 PM
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How can I make my small children (7 and 4) understand why Mommy cant always sit through their soccer/football/basketball games like daddy can (he also coaches) Why mommy cannot always go outside and play tag like daddy, and so many other things I cannot do!
I grew up without any parent involvement, and I know how deeply it has affected my life... So I have always tried todo everything I could to ensure my children grow up to be happy, healthy with fond childhood memories, with good morals and values. I am terrified that they will grow up only remembering that Daddy was there for all the fun stuff, not knowing Mommy was sick... I am terrified that no amount of emotional support and guidance will make up for the physical things I cannot do...
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bcaldwell8
3 posts
Feb 02, 2009
10:47 AM
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I would ask how do I explain why mommy can not get up in the morning and make hot breakfast lke she use to? Why does she need to nap all the time? Why dont we play like we use to or go on girls day out? Why is the thought of having sex with my husband terifying?
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chicklette
1 post
Feb 04, 2009
11:32 AM
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I recently went to a rhumatologist and she informed me that sometime after menopause (I don't know when that will be as I had a hysterectomy when I was 22 and now I am 51 with no hot flashes etc. yet) that fibromyalgia will burn itself out. Is this true? I never know what to believe anymore. I have had fibro for 8 years now and the pain is getting worse instead of better. The dr. told me that it will get worse before it gets better. I don't know how much worse it can get. In the mornings I have to literally roll out of bed until I hit the floor and pull myself up the wall. Will this disease burn itself out?
Last Edited on 4-Feb-2009 11:36 AM
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crstllncstr
6 posts
Feb 09, 2009
5:20 AM
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bcaldwell, I feel your pain. Yesterday was a beautiful spring-like day, and while I slept til noon, my husband cooked breakfast and spent time with the kids. Afterward, while i was trying to muster the strength to get up and going, my family was outside taking in the day. I watched out the window as my children played with their dad, the sun glistening off their innocent faces as they rode bikes, laughed and enjoyed life. I couldnt even sit outside and watch them because of the intense headaches sunlight causes. I lurked on the front porch momentarily, face wrenched in pain, looking like a crotchety old person about to demand they "get off my lawn!"
Later that evening, my husband having had a joyous day, was in the mood... Those insecure feelings turned my stomache... The thought of being intimate brings so many bad feelings to the table, as my husband had an affair during one of my worst periods battling fibromyalgia, because I simply couldnt perform... It was before my diagnosis... before even I understand my shortcomings...
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crstllncstr
7 posts
Feb 09, 2009
5:25 AM
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Chicklette: I would LOVE to know when you find a definitive answer to this question. I have never heard of this, but the thought of it being true gives me a little hope for the future... as thus far I have been terrified of what will become of my body during that age...
Because with each child I had, my health got worse, I have decided to have no more, even though my husband wants 2 more. This and because I am constantly havingproblems with my ovaries, has made me think having a hysterectomy would help... I was told though that at my age, having a hysterectomy would put my body into early menopause... Is this not true? At 22, according to the doctors, it should have happened to you as well... Did you have any menopausal symptoms?
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owner
24 posts
Mar 03, 2009
10:51 AM
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To all of you, I feel your pain and lack of hopefulness. I, too, was where you are now. There is no magic bullet. You need to find exercise that you can gradually stretch your muscles out such as my fibroga and you need to concentrate on your diet. I would be happy to talk to any one of you and I am sure that by the time we are done talking, you will have hope. Remember, it took years to get the way you are and you have to take time to step back out of the pain and distress that you are in. Please call me at my toll free number anytime 866-920-9291 or email me at thegroveapproach@embarqmail.com.
I will be happy to talk with you.
Hope, Peace and Joy Always!
Sincerely,
Karen Grove
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